Course: Inglaterra

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authors: Tamayo-Velázquez MI ,Simón-Lorda P, Ruiz D.
last update: 27/08/2010

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Executive Summary on Advance Directives in ENGLAND and WALES

More information on AD in England and Wales can be found at the following asociations:

Dignity in Dying www.dignityindying.org.uk. It is an organisation that promotes patient choice at the end of life. They are also an information source on end-of-life issues. Dignity in Dying is independent of any political, religious or other organisation.

The World Federation of Right to die Societies. www.worldrtd.net. This federation provides information about different matters related to the end of life in different countries of the world. Information about ADs in United Kingdom can be found in this link www.worldrtd.net/faqs/factsheets/?id=43

The Alzheimer's Society. www.alzheimers.org.uk. It is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland . Information about ADs can be found in this link www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=143

Patient UK www.patient.co.uk. It is a web with information for patients and carers. Information about ADs can be found in this link http://www.patient.co.uk/showdoc/40025325/

Pro-choice living will. www.livingwill.org.uk. This organization provides information about ADs in the United Kingdom and Living wills forms to buy.

Clickdocs www.clickdocs.co.uk It is a legal document shop for England, Scotland and Wales. Information and documents about ADs can be found in this link www.clickdocs.co.uk/living-wills.htm

Wills Registry UK. www.wills-registry.org/. This organization provides information and information about living wills and different ways to register all kind of wills. Information about living wills can be found in this link http://www.wills- registry.org/qanda.php?section=4

Net Lawman www.netlawman.co.uk/ is a site on Internet that offers United Kingdom legal documents and free legal information. Specific information about ADs can be found in this link http://www.netlawman.co.uk/info/living-wills-advance-directives.php

Alzheimer-Europe. This organization offers information about Alzheimer disease. It has a section with country comparison on AD rules of the major countries of Europe. United Kingdom - England and Wales. Advance directives: http://www.alzheimer-europe.org/EN/Policy-in-Practice2/Country-comparisons/Advance-directives/United-Kingdom-England-and-Wales

Research projects
Publications
Books
- British Medical Association. Withholdingand withdrawing life-prolonging medical treatment. Guidance for decision making. BMJ., Oxford,2007. ISBN: 9781405159579.
- Ernest Edsel. The CompleteLegal Form Book of Living Wills: Advance Directives to Physicians; MedicalPowers of Attorney; Pain Management Plan; and, Final Instructions andDirectives. Publisher: Lulu.com (29 Sep 2009). ISBN-10: 0557063205. ISBN-13:978-0557063208.
- Jacqueline M Atkinson. Advance Directives in Mental Health: Theory, Practice and Ethics. London, 2007. ISBN: 9781843104834.
- Printha Bowen. Living Will(Legal Form Packs) Valid in England & Wales.Lawpack Publishing Ltd (5 Oct 2007). ISBN-10: 1898217521, ISBN-13:978-1898217527.
- David John Doukas, William Reichel. Planning for Uncertainty: A Guide to Living Wills and Other AdvanceDirectives for Health Care. The Johns Hopkins UniversityPress (1 Sep 1993). ISBN-10: 0801846714, ISBN-13: 978-0801846717.
- Mark Fairweather,Rosy Border. LivingWills and Enduring Powers of Attorney. Routledge-Cavendish; 2 edition (10Dec 2003). ISBN-10: 1859418562. ISBN-13: 978-1859418567.
Articles
- SeymourJ, Almack K, Kennedy S. Implementing advancecare planning: a qualitative study of community nurses' views and experiences. BMC Palliat Care. 2010 Apr8;9:4. Available on line: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854100/
- Pierce R. A changing landscapefor advance directives in dementia research. Soc Sci Med. 2010 Feb;70(4):623-30. Epub 2009Nov 22.
- Bisson JI, Hampton V, Rosser A, Holm S. Developing a carepathway for advance decisions and powers of attorney: qualitativ$e study. Br J Psychiatry. 2009Jan;194(1):55-61. Available on line: http://bjp.rcpsych.org/cgi/content/full/194/1/55
- Huxtable R, Slowther A . “Report on Advance Directives in UK”. In Country Reports on Advance Directives , eds. N. Biller-Andorno,S. Bauer and R. Andorno. (Zurich: Institute of Biomedical Ethics, 2008)
- Dimond B. The Mental Capacity Act 2005 and decision-making: advance decisions. Br JNurs. 2008 Jan 10-23;17(1):44-6.
- Johnston C, Liddle J. The Mental CapacityAct 2005: a new framework for healthcare decision making. J Med Ethics. 2007 Feb;33(2):94-7
- Foster J, Turner M. Implications of the Mental Capacity Act 2005 on advance careplanning at the end of life.Nurs Stand. 2007 Sep 19-25;22(2):35-9.
- Toller CA, Budge MM.Compliance with and understanding of advance directives amongtrainee doctors in the United Kingdom. JPalliat Care. 2006 Autumn;22(3):141-6
- Matesanz Mateu B. Advance statements: legal and ethical implications. NursStand. 2006 Sep 20-26;21(2):41-5
- Dyer C. Code sets out framework for "living wills". BMJ.2006 Mar 18;332(7542):623.
- Schiff R, Sacares P, Snook J, Rajkumar C, Bulpitt CJ. Living wills and the MentalCapacity Act: a postal questionnaire survey of UK geriatricians. Age Ageing.2006 Mar;35(2):116-21. Epub 2006 Jan 13
- Bray K.Mental Capacity Act 2005 Englandand Wales:a short summary. NursCrit Care. 2005 Nov-Dec;10(6):300-1.
- Dyer C. Living wills will have tospecify treatments that patient is refusing. BMJ.2004 May 1;328(7447):1035
Links
Other resources
AdvancedCarePlanning.pdf (English; 378 Kb) file
Huntington_s_Disease_Association._Advance_Directive_or_Living_Will.pdf (English; 40 Kb) PDF document
Information about Living Wills_NHS.pdf (English; 73 Kb) PDF document
Policy-HCD_NHS.pdf (English; 144 Kb) PDF document
Age Concern_AdvancedecisionsOct2007.pdf (English; 81,7 Kb) PDF document
Office_of_the_public_health_Making_decisions.pdf (English; 416 Kb) PDF document

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